As some of you are aware, I have sarcoidosis, which is an inflammatory disorder of unknown etiology. It can affect any organ of the body, but in my case, has primarily affected my eyes and lungs. Fortunately, my eyes have been stable recently. However, my lungs have been on a downward spiral the last 4 years. I have become progressively more short of breath with less and less exertion and am on 6 liters of oxygen 24/7.
Now I find myself being able to do a little—sit a little—do a little—sit a little. Unfortunately, the sitting increments are becoming longer and more frequent. Some years ago, when I was still in practice, we had to write treatment plans listing goals for a patient. At times, it seemed inane to take time to list what the goals were, when they seemed so obvious. As a person who used to be able to multitask, having to break things into even smaller increments, has been frustrating.
Last New Year’s, my resolution was to be alive at this time this year, not even knowing I would be doing it in the midst of a pandemic. Having made it thus far, I am realizing how blessed I am. Randy has been a wonderful caregiver. He lets me do what I can, but steps in when I need extra help. We are both retired, so don’t have work to deal with. We are able to have groceries and some meals delivered.
At times, the Mendelssohn song based on Psalm 40 comes to mind.
I waited for the Lord, he inclined unto me,
He heard my complaint,
O blest are they that hope and trust in him.
No one knows what 2021 will bring, but with God’s help and the support of our community, we will continue to be blessed.